Between 2010 and 2013 the Information Point for Centronuclear and Myotubular Myopathy undertook a series of interviews with people from the centronuclear and myotubular myopathy community.

The aim of the project was to give this rare disease community a voice to tell their stories, their way and bring the community together, while showing the diversity of the conditions and raising awareness of them.

The All About Me Project interviews were published in Our World, the Information Point newsletter and are now featured here together in one place.  

To learn more about centronuclear and myotubular myopathy, please visit our main website at.